Open Humans Network

Via PersonalGenomes.org

Goal

To design and launch Open Humans Network, an online system that helps match people willing to share their health data with researchers who would benefit from access to more information, all with a focus on exploring new standards for open health data.

While people now have greater access to their own medical records, sharing personal information about their health is difficult—limiting the use of this data to advance medical research. To break down silos, the Open Humans Network will create an online portal to connect people willing to publically share data about themselves with researchers. The portal will include three components: a personal page that will allow participants to set up their data profile; a public data explorer enabling people to explore and use data compiled from participant profiles; and a set of design guidelines for researchers looking to use a collaborative data sharing model.

Project Team

PersonalGenomes.org